Showing posts with label LungLeavinDay. Show all posts
Showing posts with label LungLeavinDay. Show all posts

21 February 2017

Lung Leavin' Day

Today is my monthly charity of the month post.

When I decided to start this series, I decided that I wanted to try and support charities, causes and forms of illness that were lesser known to the general public; in order to raise more awareness.  One of my posts like this is for Ugly Mugs

Today I wanted to talk about a rare form of cancer called Mesothelioma.  I think most of us knows someone or has had a family member who has had cancer.  There are many types of cancer that are well publicised and get great fundraising from the public, such as breast cancer.  I have never heard of Mesothelioma before now, until I talked to a very special lady who was diagnosed eleven years ago.

Mesothelioma is rare and aggressive form of cancer that develops in the lining of the lungs or the abdomen.  Unlike many forms of cancer that occur naturally, Mesothelioma is caused by asbestos.  It has no known cure and the prognosis can unfortunately be bleak.  You can learn more about this cancer and the dangers of asbestos here.

One thing that I had seen in cancer patients, both young and old is an utter resilience.   A refusal to let cancer beat them and a force of will that is powerful to watch.

It is that resilience that got Heather Von St James to the stage where she has now reached eleven years of survival after a diagnosis of malignant pleural Mesothelioma which the doctors told her could take her life in as little as fifteen months.  Faced with a dire prognosis with a three month old baby girl at her side, Heather decided quite simply that she was going to live.  There is nothing stronger than a mother, determined to watch her child grow up.


You can read about Heather's incredible story here which is quite frankly awe inspiring.

After having her left lung removed, Heather and her family created a memorial to the event by starting the Lung Leavin' Day.  This day is celebrated every year by Heather, her family and friends gathering together, writing their biggest fears on a plate and smashing them into a bonfire.

Eleven years on and this tradition is still going strong and is spreading.  You can write your own fear and smash your place here.  Here is what Heather has to say:

"Having so many people come out in support of us is incredibly humbling, and SO DAMNED COOL!!!!! It is so great to have a house full of people who love and support us. Some people I only see this one time a year, others are in our lives all the time. Having friends come from out of state come is really special and makes the event so much more than just a party"

Research into this rare form of cancer is incredibly important.  You can donate to the UK charity by clicking Mesothelioma UK or for my US readers, click on MARF

It is so important to share stories like Heather's.  The human spirit is a powerful thing and Heather is proof of that.  She celebrated her eleventh year of surviving this horrible disease.  I wish her many, many more years to come.